> Fazio, register of rare diseases on the right track

But I hope a better fitting between the Regions and the Istituto superiore di sanità, è the organ of the high advice of the State, to further improve the path in the act.

To express his satisfaction with the results obtained in the mapping of rare diseases in Italy, is the vice minister of Health Ferruccio Fazio, spoke yesterday morning at the conference ‘national Network for rare diseases’ in the course of the Iss.

“last February, I had urged a connection more between the Institute and the Regions to accelerate the process and facilitate the collection of data.

Today, it seems to me that we are on the good way: the system is working and the population surveyed by the register is far more than a year ago”.

An important work, for which they are già been allocated funds since 2007. “For these activities; recalls Fazio – had been disbursed to the Regions, 30 million euro in più others 10 million for 2008-2009.

I Ask really all of the efforts to further improve the path in the act. C’è the attention of the Government to the problems of the sick rare in Italy.”

Page published on October 08, 2009

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